Hello mates, I hope you all have been very well and that you are kicking off summer months in the most effective way possible!
So many of you have attained out to check with how Dominic is executing and when I share a brief photo on Instagram tales at times, I required to pop in quickly to give you an update.
Given that I very last wrote, Dominic has done cycles two and 3 of chemotherapy. Both produced him ill a single working day of the treatment method but with a tweak of the nausea meds, he was sensation greater.
His new most loved in-clinic action? Songs remedy! He gets this kind of a big kick out of actively playing the instruments 😁
He is also Quite into daily bingo 😍
On the previous day of his 2nd cycle, he had the option to tour the helicopter pad on the medical center roof, which he Loved. The look at was wonderful and we figured out loads of fun specifics (mother enjoys a good industry excursion, ha)!
Even though property, he carries on to enjoy and quite a great deal enjoys life as common, such as loads of outside time now that it’s pleasant out!
Among rounds two and 3 of chemotherapy, we traveled to New York for Dominic to be witnessed at Memorial Sloan Kettering, wherever they have a staff of pediatric oncologists who focus in neuroblastoma.
He is becoming taken care of beneath their assistance, so significantly receiving all of his chemotherapy here in Pittsburgh, but we will vacation there for his tumor elimination operation.
We both experienced our very first Uber experience, experienced Shake Shack for the to start with time (SO Good), and Dominic experienced his first continue to be in a resort. A thriving trip, but there is genuinely no spot like property!
Our New Standard
We are receiving extremely used to the symptoms of minimal hemoglobin (two times in a row of getting a lot more drink breaks than regular though participating in outdoors? We guessed he was heading to need to have blood when he went to his clinic appointment the future day and, positive adequate, he did) and minimal platelets (far more bruising). He has had a number of transfusions of both considering that starting this journey, so a wonderful large thank you to any person who has ever donated blood, as we are now so significantly additional acutely knowledgeable of the relevance of this selfless act.
Hemoglobin, platelets, white cell counts, neutrophils, and ANC figures are now just prevalent dialogue right here.
We have all type of settled into our new plan of remedies, journeys to the hospital, managing medicines, line flushing, etc.
The greatest hurdle since this past cycle of chemotherapy is that we have experienced to give Dominic day by day pictures (vs the one-time pictures soon after the very first and next rounds) and it is the complete worst. He has usually hated shots and he just dreads them, I get anxious, and it is just a whole SCENE. The everyday photographs have been used due to the fact of his upcoming stem mobile harvest, to be certain his counts had been robust (see down below).
This coming 7 days, Dominic will have a stem mobile harvest, where by they will insert a short-term line to extract stem cells (which will then be saved) must he want them in any potential for the duration of cure down the street. It is our hope that he would not, but they will be there if he does.
The following substantial step is in two weeks when he will have his tumor elimination surgery. Next the surgery, he will have a different round of chemotherapy and then a number of months soon after that, a battery of assessments and scans to see exactly where we stand with the condition.
You should continue to pray that the cancer is responding to treatment method, that the surgeons are ready to eliminate the tumor safely and securely and proficiently, and that he has a relatively uncomplicated restoration.
Fun at Home…
A several extra pics of the young children from recent weeks ❤️
Wishing you all a enjoyment and harmless start off to your summer! ☀️❤️